Healthcare + Technology: Putting Patients First


May 8, 2012 @ 09:30, Room: 18CD

Chair: Katie Siek, University of Colorado at Boulder, USA
Findings of e-ESAS: A Mobile Based Symptom Monitoring System for Breast Cancer Patients in Rural Bangladesh - Paper
Community: user experience
Contribution & Benefit: We present the findings of our 31-week long field study and deployment of e-ESAS - the first mobile-based remote symptom monitoring system developed for rural BC patients.
Abstract » Breast cancer (BC) patients need traditional treatment as well as long term monitoring through an adaptive feedback-oriented treatment mechanism. Here, we present the findings of our 31-week long field study and deployment of e-ESAS � the first mobile-based remote symptom monitoring system (RSMS) developed for rural BC patients where patients are the prime users rather than just the source of data collection at some point of time. We have also shown how �motivation� and �automation� have been integrated in e-ESAS and creating a unique motivation-persuasion-motivation cycle where the motivated patients become proactive change agents by persuading others. Though in its early deployment stages (2 months), e-ESAS demonstrates the potential to positively impact the cancer care by (1) helping the doctors with graphical charts of long symptom history (automation), (2) facilitating timely interventions through alert generation (automation) and (3) improving three way communications (doctor-patient-attendant) for a better decision making process (motivation) and thereby improving the quality of life of BC patients.
Problems of Data Mobility and Reuse in the Provision of Computer-based Training for Screening Mammography - Paper
Contribution & Benefit: Describes the problems encountered reusing clinical data to deliver training in breast cancer screening. Details how data curation processes and tools can be better designed to improve data reuse.
Abstract » This paper explores some of the problems encountered in using a data archive to build tools for training radiologists to interpret breast screening images. We detail our experiences of taking images and case notes created as part of the work of breast cancer screening and using them as resources for training. Four instances of the use of the archive in training are described in detail and the problems they reveal are discussed. We formulate some general lessons for the mobility and re-use of rich ensembles of data and artefacts drawn from complex professional settings. We argue for a richer representation of the context from which the data was taken than can be achieved through making selected relations explicit in metadata. We also conclude that facilities for correcting and elaborating data should be available at the point of use, and not separated out as distinct activities.
Supporting visual assessment of food and nutrient intake in a clinical care setting - Note
Community: design
Contribution & Benefit: Presents the mappmal application to support visual assessment of food consumption in a clinical setting. The application provides a reliable but conservative measure of nutritional intake from partially consumed meals.
Abstract » Monitoring nutritional intake is an important aspect of the care of older people, particularly for those at risk of malnutrition. Current practice for monitoring food intake relies on hand written food charts that have several inadequacies. We describe the design and validation of a tool for computer-assisted visual assessment of patient food and nutrient intake. To estimate food consumption, the application compares the pixels the user rubbed out against predefined graphical masks. Weight of food consumed is calculated as a percentage of pixels rubbed out against pixels in the mask. Results suggest that the application may be a useful tool for the conservative assessment of nutritional intake in hospitals.
Tackling Dilemmas in Supporting 'The Whole Person' in Online Patient Communities - Note
Community: design
Contribution & Benefit: We discuss ways to better support patients' personal as well as medical information needs in online patient community settings.
Abstract » Online health communities that engage the patient as a whole person attend to personal and medical needs in a holistic manner. Whether current communities structure interaction between health professionals and patients to address the whole person is an open question. To gain insights into this question, we examined a sample of online patient communities to understand health professionals' involvement in bringing in medical advice into peer-patient conversations. We found the communities fall short in supporting the whole person, because (1) patient expertise and clinical expertise generated by health professionals are shared separately, and (2) patients' quantified data are separate from narrative experiences. Such separation in the design of these systems can lead to limitations in addressing patients' interwoven medical and personal concerns. We discuss dilemmas and design implications for supporting the whole person in online patient communities.
Interaction Proxemics and Image Use in Neurosurgery - Paper
Contribution & Benefit: Articulates the spatial organization of collaborative work practices in neurosurgery theatres by drawing on interaction proxemics and F-formations. Discusses opportunities and difficulties relating to touchless interaction in surgical settings.
Abstract » Within medical settings there is a growing interest in exploring touchless interaction technologies. The primary motivation here is to avoid contact during interaction with data so as to maintain asepsis. However, there is another important property of touchless interaction that has significant implications for their use within such settings � namely that interaction behaviour is spatially distal from the device being interacted with. To further understand these implications we present fieldwork observations of work practice in neurosurgery theatres. Drawing on the notion of interaction proxemics and the theory of F-formations, our analysis articulates the spatial organization of collaborative work practices and interaction in these settings. From this understanding of spatial practices, we discuss opportunities and difficulties relating to the design of touchless interaction technologies for in surgical settings.